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In the spring of 2009, I was the 217th person ever to be diagnosed with anti-NMDA-receptor autoimmune encephalitis. Just a year later, that figure had doubled. Now the number is in the thousands. Yet Dr. Bailey, considered one of the best neurologists in the country, had never heard of it. When we live in a time when the rate of misdiagnoses has shown no improvement since the 1930s, the lesson here is that it’s important to always get a second opinion. While he may be an excellent doctor in many respects, Dr. Bailey is also, in some ways, a perfect example of what is wrong with medicine. I was just a number to him (and if he saw thirty-five patients a day, as he told me, that means I was one of a very large number). He is a by-product of a defective system that forces neurologists to spend five minutes with X number of patients a day to maintain their bottom line. It’s a bad system. Dr. Bailey is not the exception to the rule. He is the rule. ↗
Had I catalogued the downsides of parenthood, "son might turn out to be a killer" would never have turned up on the list. Rather, it might have looked something like this: 1. Hassle. 2. Less time just the two of us. (Try no time just the two of us.) 3. Other people. (PTA meetings. Ballet teachers. The kid's insufferable friends and their insufferable parents.) 4. Turing into a cow. (I was slight, and preferred to stay that way. My sister-in-law had developed bulging varicose veins in her legs during pregnancy that never retreated, and the prospect of calves branched in blue tree roots mortified me more than I could say. So I didn't say. I am vain, or once was, and one of my vanities was to feign that I was not.) 5. Unnatural altruism: being forced to make decisions in accordance with what was best for someone else. (I'm a pig.) 6. Curtailment of my traveling. (Note curtailment. Not conclusion.) 7. Dementing boredom. (I found small children brutally dull. I did, even at the outset, admit this to myself.) 8. Worthless social life. (I had never had a decent conversation with a friend's five-year-old in the room.) 9. Social demotion. (I was a respected entrepreneur. Once I had a toddler in tow, every man I knew--every woman, too, which is depressing--would take me less seriously.) 10. Paying the piper. (Parenthood repays a debt. But who wants to pay a debt she can escape? Apparently, the childless get away with something sneaky. Besides, what good is repaying a debt to the wrong party? Only the most warped mother would feel rewarded for her trouble by the fact that at last her daughter's life is hideous, too.) ↗
#kids #motherhood #parenting #life
The companies that refused to make hard choices, or refused to admit that anything much was happening, fared badly. If they survive, it is only because their respective governments will not let them go under. ↗
Monsters are getting more uppity, too (...) I heard where this guy, he killed this monster in this lake, no problem, stuck its arm up over the door (...) and you know what? Its mum come and complained. Its actual mum come right down to the hall next day and complained. Actually complained. That's the respect you get. ↗
Taking care of yourself is one of the hardest jobs -- don't ever let anyone tell you otherwise. It's much easier to take care of others. ↗
Most of us, I believe, admire strength. It's something we tend to respect in others, desire for ourselves, and wish for our children. Sometimes, though, I wonder if we confuse strength with other words—like 'aggression' and even 'violence'. Real strength is neither male nor female; but it is, quite simply, one of the finest characteristics that an human being can possess. ↗
I think… that love encompasses the experience of the possible transition from the pure randomness of chance to a state that has universal value. Starting out from something that is simply an encounter, a trifle, you learn that you can experience the world on the basis of difference and not only in terms of identity. And you can even be tested and suffer in the process. In today’s world, it is generally thought that individuals only pursue their own self-interest. Love is an antidote to that. Provided it isn’t conceived only as an exchange of mutual favours, or isn’t calculated way in advance as a profitable investment, love really is a unique trust placed in chance. It takes us into key areas of the experience of what is difference and, essentially, leads to the idea that you can experience the world from the perspective of difference. In this respect it has universal implications: it is an individual experience of potential universality, and is thus central to philosophy, as Plato was the first to intuit. ↗
